Resources

Support for people living with HoFH and their families

We are in the process of developing a series of downloadable tools and resources to help people living with HoFH and their families.

The following materials are currently available, but be sure to check back in the future for more.

Organizations working for a better future for those living with HoFH

There are a number of advocacy and research groups in Canada, the US and Europe with a mandate to help improve the lives of people living with HoFH.

Visit these websites for further information, resources, and support.

These organizations are an incomplete listing of rare disease advocacy groups. The list is meant for informational purposes only and is not intended to replace your healthcare professional’s medical advice. Ask your doctor or nurse any questions you may have about your disease or treatment plan.