Resources

Resources that may provide additional insight and support for you, your patients, and their parents and caregivers

Patient Brochure

Help your patients and their caregivers learn about the causes, impact, and signs and symptoms of HoFH

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HoFH Mechanism of Disease

Watch this 2-minute video on the HoFH mechanism of disease.

Organizations working for a better future for those living with HoFH

There are a number of advocacy and research groups in Canada, the US and Europe with a mandate to help improve the lives of people living with HoFH.

Visit these websites for further information, resources, and support.

These organizations are an incomplete listing of rare disease advocacy groups. If you would like to have your group added to the list, please contact [email protected].

FH Canada

FH Canada Registry

The goals of the FH registry are to improve care to patients with FH and to reduce cardiovascular disease in this population at high risk

https://www.fhcanada.net/

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Family Heart Foundation

The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia and elevated lipoprotein(a).

https://familyheart.org/

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